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The initiative

The initiative “#dataforbetterhealth” aims to identify the existing impediments for a FAIR data policy in public health and to formulate, test and implement solutions for these impediments  in order to achieve an integrated data access policy. These solutions must be technically, semantically, economically and legally sustainable. In addition, a widely supported governance model needs to be elaborated.

It can be expected that an integrated data access policy will lead to better support for scientific research, a more effective development of medicines and medical devices, improved of patient care, improved and support for clinical trials, support for personalized care, support for prevention, patient centered care, and lower medical expenses…

The “#dataforbetterhealth” initiative wishes to encourage and engage all service providers and knowledge institutes active in the field of healthcare (including drug development, medical device development, …), health economy, information management, privacy and security, legislation (universities of applied sciences, …). …, both public and private organizations, profit as well as non-profit (data science communities, open data communities, open Knowledge communities, …) organizations.

#dataforbetterhealth is an INITIATIVE of the federal minister of Public health, the federal minister of Digital Agenda, the federal Secretary of state Privacy, SUPPORTED by Sciensano, NIDO – the innovation lab of the federal government and DigitYzer, and INSPIRED by RIZIV-INAMI, FOD-SPF Public Health, FAGG-AFMPS, IMA-AIM, IMEC, AGORIA, PHARMA.BE, VPP, LUSS, HOSPITALS.be, KCE, BOSA, …